Can you imagine a disease where you can't be out in the sun for more than a few minutes at a time?


Can you imagine a disease where you can no longer drink alcohol or eat spicy foods?


Can you imagine a disease where you have to be in a controlled environment of a cool 65-70 degrees 365 days a year/24 hours a day because anything warmer than that causes your disease to worsen?


Can you imagine a disease that causes nerve damage to your face that in turn causes burning and pain when the above "triggers" occur or sometimes for no reason at all?





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